Monday, August 31, 2009

My final week of tx

Okay I've started my final week of treatment and am really looking forward to this being done. New side effects this week are a thick and sticky form of saliva that coats the mouth and tastes awful, weird hiccups, and increased muscle spasms in my neck. These used to happen infrequently and would go away for long periods of time. Unfortunately, now every time I yawn or stretch I get these awful spasms. They feel kind of like a charlie horse but in your throat. I had my last weekly doctors appointment today and asked him if these are normal. The answer is no but it is possible the radiation is irritating nerves that have already been damaged by the tumors. He gave me a prescription for Baclofen and hopefully it will stop the spasms and the hiccups. He thinks these are related. I looked up the drug and it appears to be a strong muscle relaxer and anti-seizure medicine and has a warning about using machinery or needing to be alert. The last drug of this type I was given "Neurontin" gave me short term memory loss. I felt like Dory in "Finding Nemo" I thought I'd have a grasp on something and then turn around and that thought was gone. Thank goodness I've asked for some time off this week. The idea of a five day weekend is really helping me get through this week.

On the work front I have some good news, I've finally managed to hire an assistant! Woo Hoo! This will free up my time to take on more of the recruiting and hopefully lead to that promotion my boss has been hinting at.

TTFN

Saturday, August 29, 2009

101 degrees today

It was crazy hot today here in Socal and it made me feel so lethargic I didn't get much done. Almost all of August we've had a repeat of "June Gloom" which I knew couldn't last forever. So summer has returned with a bang and wildfires to boot. I just hope we don't get them in Simi this year.


Last night instead of seeing a movie we went to the mall for a little retail therapy. I decided to try a Jamba Juice smoothie. I got a small strawberries wild with a protein boost and it took me about two hours to drink it. I'm not sure if it had a lot of acid in it from the fruit juice or was just too much for my stomach but I was sick all night.


Tomorrow, Caroline wants to take the boys to the park to play. Those little guys sure do have a lot of energy. Here's hoping it's not too hot.

Friday, August 28, 2009

Only one week to go!

Another week down and just one more week to go. I'm feeling remarkably well and am looking forward to the weekend. On the agenda this weekend......shopping, cleaning and laundry, just the normal weekend stuff. Krysta and I usually go out to dinner and a movie on Fridays and she is missing our regular routine. She asked to go to "Famous Dave's" a BBQ place here in town and was a bit frustrated when I said no. I can't possibly go to a restaurant where I can smell the yummy food but can't eat! Talk about torture! Which is kind of funny because the last movie we saw was Julie and Julia (Meryl Streep is awesome) and that is all about food too! I think I might let her pick the movie to make it up to her. Just as long as it's not Halloween II...........

Tuesday, August 25, 2009

Monday, Monday

Well actually it's Tuesday and I didn't get a chance to write this yesterday. Four weeks down and two to go. Yesterdays appointment went fine and I saw the doctor for my weekly visit. Since, it's UCLA the doctor always has medical students with him. The last two appointments It's been fairly clear these are new students still a little wet behind the ears. With my diagnosis sometimes I feel like I've been pulled into an episode of "House". I could hear the group discussing me before they came in the room and the doctor actually told me that they rarely see someone with my condition. This a theme on every doctors visit I have at least initially. My Endocrinologist is also a professor at UCLA and at first he was skeptical of the diagnosis and then after we went over all the images and studies he told me he was going to present me as a case study to his class. It is interesting to see brand new medical students learn but sometimes I feel like I'm being looked at like a specimen.


I was told yesterday that they expect my side effects to get worse and that normally starts about the fourth week and continues until a month or so after I'm done with radiation. This is because I will continue to "cook" for awhile even though the treatments are over. So far they have been mild but my voice has definitely been affected and I'm at whisper level now. The doctor assured me the voice weakness and sore throat are temporary.


On an up note today is the first day of school and Krysta is excited about going back to regular school after our attempt at home schooling last year. I'm excited because this means she will actually leave the house everyday!


That's it for now. For everyone that reads this thank you for taking the time and for Mom, Jeanne, Susan and Lisa, I love you and thank you for your support!

Thursday, August 20, 2009

Excellent Article on Slate


I read this article on Slate this morning about Health care Reform. The next time someone says they are against an evil government health care plan, ask yourself if that's what they really think or is it good enough for them. Because it seems apropos for this discussion, I'm attaching one of my all time favorite cartoons.

As we've noted before, if you add the failure of employer-linked health care with Medicare, Medicaid, government employment, and the military, a huge chunk of Americans already have taxpayer-funded health care. It's a diverse lot. Rich old people and poor kids, university professors, congressmen, teachers, DMV clerks and their families. Pretty much everybody you see on CNBC yelling about socialism? Their parents and grandparents (if they're still living) get taxpayer-funded health insurance. Mine do. Charles Grassley, the septuagenarian Iowan who is doing his darnedest to torpedo meaningful health care form, has it. Arthur Laffer, the 69-year-old economist who went on television and suggested that Medicare isn't a government health care program, is eligible for Medicare. Dick Armey, who spent many years teaching at a state university and served several terms in Congress, has had taxpayer-funded health insurance for much of his adult life. Same for Rudy Giuliani and Newt Gingrich. Democratic senators like Max Baucus, Kent Conrad, and Ben Nelson? Yes, yes, and yes. Law professors at the University of Tennessee have it. The employees of George Mason University, which houses the free-market Mercatus Center, do, too. Policy analyst Betsy McCaughey, currently reprising her 1990s role of health care bamboozler, will be eligible for it in a few years' time.


Obvious? Yes. But it's still worth pointing out. All these people rely on—or have relied on—the government to pick up the tab for their health care and for their health insurance. And that hasn't caused euthanasia or the abolition of private property. Funny how you don't hear any complaints from worthies about taxpayer-funded health insurance when it's covering them, their staffs, and their loved ones. For many of these people, especially the older ones, there literally is no affordable alternative. Insurance companies prefer to insure healthy people, not sick people—that's how they make money. And older people are more likely to run into health trouble requiring expensive care. Dick Armey, who is suing to get out from under the tyranny of Medicare, is apparently under the illusion that insurance companies are really eager to cover 69-year-old men at a low cost. House Minority Leader John Boehner is a 59-year-old smoker whose skin has an orange hue. What do you think Aetna would charge him per month for a good policy?


After the stock-research scandals of the 1990s, analysts were required to disclose whether they or their families owned stock in the companies they were talking about. That has since emerged as a key gauge of credibility. I'd like to see something similar for the health care debate. Before they weigh in on the prospects for health care reform, interview subjects—pundits, talking heads, policy wonks, editors, members of Congress—would have to disclose whether they or their family members rely on taxpayer-funded health insurance.


Such a disclosure might eat into valuable airtime. But it would clarify the debate. We're witnessing a conversation between various people who are dependent on taxpayer-funded health insurance telling the public why tens of millions of people shouldn't have access to it. Most of the opponents of universal health care don't really think the public provision of health insurance services is immoral, evil, or socialistic—after all, they'd be at risk of bankruptcy without it. And most aren't opposed to deficit spending as a matter of principle. (How do they think we're paying for the Medicare prescription drug entitlement the Republicans rammed through a few years ago?) In effect, they believe that taxpayer-funded health insurance is appropriate and crucial for some people—themselves, their staffs, their parents—but not for others; that some are entitled to it, and that others simply aren't. In Washington, unlike at Whole Foods, they want us to believe that what's good for the goose will poison the gander.

Got lectured.........

In the nicest way possible about needing to keep up my caloric intake yesterday during the Swallowing Clinic appointment. So today I decided to drink the Ensure I had bought just in case. All I can say is YUCK!!!! It's basically soy formula for adults. None the less I forced myself to drink it then promptly brushed my teeth afterwards. I've also discovered the next "side effect" of the radiation. My throat is raw and since I have 2 1/2 weeks left I'm guessing it is going to be painful before all is said and done. This is going to make my calorie intake even harder to do. I told the Speech Pathologist that there are many people that would pay good money for a diet plan that was absolutely guaranteed to produce results such as the one I'm on. If only there was a way to mimic the side effects without the actually radiation I could market it and make a bundle!

Monday, August 17, 2009

Manic Mondays..............

Today was a "Monday" in just about every sense of the word. I've been interviewing assistants at work and finally found someone we all liked who said she was really looking for part time work. I did the background check and today I was ready to make an offer. She turned me down flat saying she needed a job with benefits. While I can certainly understand needing benefits the job she applied for plainly said it was part time and I made sure she knew what "part-time" meant. I'm back to square one sifting through resumes of folks that think that once you see how fabulous they are that you are going to offer them full time and more money.


I had my appointment at Cedars Sinai today with the Endocrinologist specialist. I had downloaded a map and directions from Mapquest and the directions turned out to be wrong. I got lost and never did find the place, I kept driving around trying to find one of the streets on Mapquest. I should have known better. The last time I drove to that part of Los Angeles I got hopelessly lost as well. I guess I'll have to reschedule and hope they don't think I'm a flake. Next time I'll use Google.


The funny thing was I was able to locate UCLA just fine using the surface streets and went to my radiation appointment early. I hadn't eaten yet and knew I had to force something down. There's a Burger King around the corner from the doctor's office. I ordered a cheeseburger and settled down to take a bite. Now I've shared with you my taste buds are no longer working but there's noting wrong with my sense of smell. I can't even describe the disappointment of biting into a cheeseburger and having the taste not correlate with the smell that is wafting everywhere. :( This is why they suggest a liquid diet of protein shakes because eating regular food is so disappointing that you have to force yourself to eat. There is an upside though, this is a diet I will not be tempted to cheat on.
Radiation went fine as usual and I had my weekly appointment with the Oncologist. I asked him how long it would take for my taste buds to return. He said it could be months and my saliva glands could take longer. I guess I'm going to be on this "diet" for a very long time. Maybe I'll be able to fit into my skinny jeans?